Hi my name is Wendy, I am glad to have you here. I am married, and have 4 kids. I have a rare disability called ataxia. I am currently a substitute teacher and a Jordan Essential Consultant.
My ataxia stems from my cerebellum, the word for it is cerebellar hypoplasia. Meaning not only is my disease hereditary from my mother and my grandmother, but I was born with it. Currently there is no cure for it nor any other type of ataxia.
What that means to me. Ataxia is a hard disease to live with. I fall over air it seems. I choke on my saliva, it is difficult to talk and to walk. I get brain fog when I am communicating and it comes out like a stutter or jibberish. It takes a while to type and write as my hands hurt and do not want to cooperate with each other. Lovely side effects.
I should be thankful, at least for the most part, I can get around unassisted. I am thankful there are so many of my fellow ataxians who are bedridden because of this disease.
What it does not mean to me. Ataxia can be hereditary, but is not contagious. You are not going to get it from me if we are friends. I walk funny and slur my words, but I am not drunk. Don’t assume I am drunk. I drink water and Shirley Temples when I go out. Just because I have this disease does not mean that I don’t want to work. I have a Master’s Degree in Teaching and sell Jordan Essentials on the side, but I have to take time off due to appointments, pain, and exhaustion so rather than be a full time teacher I substitute.
In conclusion, having a disease is not the end of the world, but know that it is difficult. We need you and we can be helpful to you too. Be patient with people. Remember, the person you assume is weird could just have a disability.